We now have all got decisions we made in lifestyle. Some decisions were very good and became life changing while others are not so good and be life experience. One decision I manufactured in my life will usually stand out because the best decision I available. This engaged my most youthful son Gannon and the decision to have a main operation not only kept his lifestyle, but provided him an improved quality of life. To understand why this kind of changed his life for the better you need to know what he have been through.
Gannon is a seven year old fabulous blond curly hair blue eyed little boy whose eyes twinkle when he smiles.
He offers this knack for making people fall in love with him in an instant. Pertaining to the initial two years of his your life he was a healthy little boy, nevertheless there was a thing not quite right with him. He wasn’t expanding normally intended for his era. Then in June of 2006 it all became clear why.
This was a normal, beautiful summer season day in northern California. My husband Robert and my Uncle Karl were in the backyard placing are damages and my other three children had been outside using their motorcycles and playing football. My mom and I were on the point of barbecue and realized we needed to run to the supermarket.
Gannon was being perfectly fine playing with his sizzling wheels. When we arrived house, I came in from the car port too Mike holding Gannon in his biceps and triceps and he said “Something is wrong, the mat is coming. I took one look at Gannon and my heart dropped. His body was stiff and he was nervous-looking. He was foaming from his mouth and his eyes were rolling back in his mind. All I really could think at that moment was “Where the heck is the mat my baby is about to die right here before my eyes. Gannon finally stopped trembling right if the ambulance pulled up. They required one take a look at him and said “He had a seizure. “What the heck, I thought.
That was the beginning of the next 6 years of private hospitals; testing, medicine and observing my little boy wither apart right in front of my eyes. Gannon had a grand-mal seizure that day and it was only a small taste of what we were planning to face. The next three years he continued to have six to eight grand-malls a week. Gannon had numerous tests run on him over the course of this nightmare. The problem is that all these testing, the CAT scan, MRI, PET check out, various blood work and several others, most came back normal. How is that possible? The neurologist had no hint, so they will just made a decision to shove meds down his throat.
Gannon took six different seizure meds on a daily basis. At the same time having been also diagnosed with Autism so the doctors chalked it up to that. I was inside my breaking stage and then this individual stopped. Suddenly Gannon, at the age of 5? ended having grand-malls. Finally the complete family, Gannon’s therapist, the doctors, many of us got to breathe. Sadly, this kind of only survived one brief year. A bit after his sixth birthday Gannon began experiencing seizures again, now they were different, he was having partial seizures. So , back in the drawing board it was pertaining to the neurologists.
These new seizures had been daily plus they lasted hours and hours. There were times when he could seize morning to night time. Towards the end this was every day. So , below we go with more testing. This time all of us tried an exclusive diet, Gannon had a medical procedures to pèlerine a vagus nerve signalgeber, and we also tried IVGG therapy. Like before these people were all failures. Now Gannon was very ill. His weight decreased down to beneath 30 pounds. So , here comes one other surgery to acquire a feeding pipe. This didn’t help as he was losing more unhealthy calories from seizing then having been consuming. Having been dying! The doctors feared at any instant he would go into cardiac arrest.
Therefore , that still left us with one option: Brain surgery. On May fourth 2011, Gannon checked out into U. C. H. F. and also ready for a long 14 hour surgery. The surgery involved removing his right eventual lobe and disconnecting the entire right aspect of his brain. Therefore , my husband and I anxiously waited. That was your longest 18 hours of my life. Finally, the medical procedures was total and here comes my baby. What a sight to see. Gannon had tubes everywhere, his whole mind was twisted up, there have been wires sticking out of his head money the liquid, I broke down. That was obviously a pattern above the next few weeks as I was obviously a roller coaster of emotions.
The worst was your fear of ready to see the result. I knew there is paralysis in the left side but would he talk, would he be my Gannon? Time could tell. About July nineteenth, Gannon inspected of the clinic. Things had been different which for sure. Yes, he was today wheelchair certain, yes he was still having seizures, though minimal these people were still parenting there unattractive head, yes he was even now on medications but in some manner things had been better. Gannon was content. He was putting on weight, he was talking and most notably he was grinning his tiny half laugh and he was laughing.
The laughing was the best because there weren’t very many occasions of those just before. We knew walking out of generally there we even now had a tough road forward; we had to get Gannon walking again. We as well knew that day in-may changed our lives forever. Not really a year later Gannon still has epilepsy, he is paralyzed, he still has autism nevertheless there is something he has received. He has gained an opportunity at a life. My personal baby can be not sick anymore, there is no fear of fatality at any moment. He provides a life, a quality life. Choosing to have my own little boy reduce half his brain will usually remain the very best decision I’ve ever made.
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